Medical and Social Expert Evaluation and RehabilitationMedical and Social Expert Evaluation and Rehabilitation1560-95372412-2092Eco-Vector3592810.18821/1560-9537-2016-19-4-195-202Research ArticleOverview of scales and questionnaires applied in the assessment of the «quality of life» for craniopharyngioma patientsKutinMaxim A.MD, PhD, Neurosurgeon, Senior Clinical Researcher, 8th Neurosurgical unitkutin@nsi.ruSidnevaYu. G-IonovaT. I-N.N. Burdenko Research Institute of NeurosurgerySaint-Petersburg Clinical Complex «N.I. Pirogov National Medical Surgical Center»1512201619419520221072020Copyright © 2016, Eco-Vector2016In this article there was reviewed the literature devoted to the problem of the assessment of the quality of life ofpatients with craniopharyngiomas. The given article raises questions about the application of questionnaires for the assessment of the quality of life, inability to the use the self-assessment systems in the classic sense in patients with craniopharyngiomas, and the need for the doctor himself to deliver systems for the evaluation of results of the management and outcomes.reviewcraniopharyngomathe quality of lifeобзоркраниофарингиомакачество жизни[Jane J.A., Jr., Laws E.R. Craniopharyngioma. Pituitary. 2006; 9(4): 323-6. DOI: 10.1007/s11102-006-0413-8][Karavitaki N., Cudlip S., Adams C.B., Wass J.A. Craniopharyngiomas. Endocrine Rev. 2006; 27(4): 371-97, DOI: 10.1210/er.2006-0002][Prabhu V.C., Brown H.G. The pathogenesis of craniopharyngiomas. Child’s Nerv. Syst. 2005; 21(8-9): 622-7. DOI: 10.1007/s00381-005-1190-9][Brunel H., Raybaud C., Peretti-Viton P. et al. Craniopharyngioma in children: MRI study of 43 cases. Neuro-Chirurgie. 2002; 48(4): 309-18.][Crotty T.B., Scheithauer B.W., Young W.F., Jr. et al. Papillary craniopharyngioma: a clinicopathological study of 48 cases. J. neurosurg. 1995; 83(2): 206-14. DOI: 10.3171/jns.1995.83.2.0206][Iwasaki K., Kondo A., Takahashi J.B., Yamanobe K. Intraventricular craniopharyngioma: report of two cases and review of the literature. Surg. Neurol. Oct 1992; 38(4): 294-301.][Bunin G.R., Surawicz T.S., Witman P.A., Preston-Martin S., Davis F., Bruner J.M. The descriptive epidemiology of craniopharyngioma. J. neurosurg. 1998; 89(4): 547-51. DOI: 10.3171/jns.1998.89.4.0547][Samii M., Tatagiba M. Craniopharyngioma. In: Kaye A.H., Laws E.R. Jr (Eds.): Brain Tumors: An Encyclopedic Approach. New York: Churcill Livingstone; 1995: 873-94.][Rickert C.H., Paulus W. Epidemiology of central nervous system tumors in childhood and adolescence based on the new WHO classification. Child’s Nerv. Sys. 2002; 17: 503-11.][Caldarelli M., Massimi L., Tamburrini G., Cappa M., Di Rocco C. Long-term results of the surgical treatment of craniopharyngioma: the experience at the Policlinico Gemelli, Catholic University, Rome. Child’s Nerv. Syst. 2005; 21(8-9): 747-57. DOI: 10.1007/s00381-005-1186-5][Sainte-Rose C., Puget S., Wray A. et al. Craniopharyngioma: the pendulum of surgical management. Child’s Nerv. Syst. 2005; 21(8-9): 691-5. DOI: 10.1007/s00381-005-1209-2][Thompson D., Phipps K., Hayward R. Craniopharyngioma in childhood: our evidence-based approach to management. Child’s Nerv. Syst. 2005; 21(8-9): 660-8. DOI: 10.1007/s00381-005-1210-9][Tomita T., Bowman R.M. Craniopharyngiomas in children: surgical experience at Children’s Memorial Hospital. Child’s Nerv. Syst. 2005; 21(8-9): 729-46. DOI: 10.1007/s00381-005-1202-9][Zuccaro G. Radical resection of craniopharyngioma. Child’s Nerv. Syst. 2005; 21(8-9): 679-90. DOI: 10.1007/s00381-005-1201-x.][Mortini P., Losa M., Pozzobon G. et al. Neurosurgical treatment of craniopharyngioma in adults and children: early and long-term results in a large case series. J. Neurosurg. 2011; 114(5): 1350-9. DOI: 10.3171/2010.11.jns10670.][Spilker B. Quality of Life and Pharmacoeconomics in Clinical Trials. Philadelphia: New York Lippincott Raven; 1996.][Staquet M.J. Quality of Life Assessment in Clinical Trials. Oxford etc.: Oxford University Press; 1998.][Новик А.А., Ионова, Т.И., Руководство по исследованию качества жизни в медицине. М.: ОЛМА Медиагрупп. 2007. /][Brazier J.E., Harper R., Jones N.M. et al. Validating the SF-36 health survey questionnaire: new outcome measure for primary care. Br. Med. J. (Clin. Res. Ed.). 1992; 305(6846): 160-4.][Varni J.W., Seid M., Rode C.A. The PedsQL: measurement model for the pediatric quality of life inventory. Med. Cre. 1999; 37(2): 126-39.][Greenberg M.S., Arredondo N. Handbook of Neurosurgery. 6th Ed. Lakeland, FL New York: Greenberg Graphics; Thieme Medical Publishers; 2006.][Reisberg B., Ferris S.H., de Leon M.J., Crook T. The Global Deterioration Scale for assessment of primary degenerative dementia. Am. J. Psychiatry. 1982; 139(9): 1136-9.][Katz S. Assessing self-maintenance: activities of daily living, mobility, and instrumental activities of daily living. J. Am. Geriatr. Soc. 1983; 31(12): 721-7.][Duff J., Meyer F.B., Ilstrup D.M. Laws E.R., Jr., Schleck C.D., Scheithauer B.W. Long-term outcomes for surgically resected craniopharyngiomas. Neurosurgery. 2000; 46(2): 291-302; discussion: 295-302.][Elliott R.E., Sands S.A., Strom R.G., Wisoff J.H. Craniopharyngioma Clinical Status Scale: a standardized metric of preoperative function and posttreatment outcome. Neurosurg. Focus. 2010; 28(4): E2. DOI: 10.3171/2010.2.focus09304][Wen B.C., Hussey D.H., Staples J. et al. A comparison of the roles of surgery and radiation therapy in the management of craniopharyngiomas. Int. J. Radiat. Oncol., Biol., Physics. 1989; 16(1): 17-24.][De Vile C.J., Grant D.B., Kendall B.E., Neville B.G., Stanhope R., Watkins K.E. Management of childhood craniopharyngioma: can the morbidity of radical surgery be predicted? J. Neurosurg. 1996; 85: 73-81.][Kendall-Taylor P., Jonsson P.J., Abs R. The clinical, metabolic and endocrine features and the quality of life in adults with childhood-onset craniopharyngioma compared with adult-onset craniopharyngioma. Eur. J Endocr. 2005; 152(4): 557-67. DOI: 10.1530/eje.1.01877][Dekkers O.M., van der Klaauw A.A., Pereira A.M. et al. Quality of life is decreased after treatment for nonfunctioning pituitary macroadenoma. J. Clin. Endocr. Metab. 2006; 91(9): 3364-9. DOI: 10.1210/jc.2006-0003][McKenna S.P., Doward L.C., Alonso J. et al. The QoL-AGHDA: an instrument for the assessment of quality of life in adults with growth hormone deficiency. Qual. Life Res. 1999; 8(4): 373-83.][Кутин М.А., Сиднева Ю.Г., Коновалов А.Н., Семенова Ж.Б., Кадашев Б.А., Калинин П.Л., Фомичев Д.В., Ионова Т.И., Буклина С.Б., Астафьева Л.И., Мазеркина Н.А., Саватеев А.Н., Воронина И.А. Оценка качества жизни у пациентов с краниофарингиомами; особенности и затруднения применения стандартных подходов. Обзор литературы. Вестник неврологии, психиатрии и нейрохирургии. 2016; (1): 54-67.][Dinnen A., Gye R., Bell D. Mental disturbances associated with craniopharyngioma in adults. Med. J. Austral. 5 1969; 1(14): 735-7.][Zigmond A.S., Snaith R.P. The hospital anxiety and depression scale. Acta Psychiatr. Scand. 1983; 67(6): 361-70.][Smets E.M., Garssen B., Bonke B., De Haes J.C. The Multidimensional Fatigue Inventory (MFI) psychometric qualities of an instrument to assess fatigue. J. Psychosom. Res. 1995; 39(3): 315-25.][Hunt S.M., McKenna S.P., McEwen J., Williams J., Papp E. The Nottingham Health Profile: subjective health status and medical consultations. Soc. Sci. Med. P. A: Med. Soc. 1981; 15(3, Pt 1): 221-9.][Anderson R.T., Aaronson N.K., Wilkin D. Critical review of the international assessments of health-related quality of life. Qual. Life Res. 1993; 2(6): 369-95.][Kind P., Carr-Hill R. The Nottingham health profile: a useful tool for epidemiologists? Soc. Sci. Med. 1987; 25(8): 905-10.]